Community Blog

Thoughts and personal experiences

UTTERJOY4

Learning about CMT

Posted by UTTERJOY4
12 Apr 2013

Hi,
To anyone who wants to learn about CMT after being diagnosed and also the family of the person diagnosed, I found this website which was very inciteful and informative from a personal perspective:- http://charcotmarietooth.webs.com/mycmt.htm

pappysean

ATOS/DWP CMT

Posted by pappysean
14 Feb 2013

is any one interested in taking the Work Capability Assessment to court as being inadequate and unfit to assess those with CMT (of course it is unfit, flawed, and brutal across the board)?

fuzzface

ESA medical farce

Posted by fuzzface
12 Feb 2013

I am 39 and have CMT type 1a. Last May I had a medical to move from Income Support to ESA. I was put in the work related activity group with a score of 17. I didn't receive this decision until the end of October.

On November 12th I received another medical questionnaire, so ...

cat81

mum of three

Posted by cat81
5 Feb 2013

I'm a 31yr old mum of 3 young children i've had problems with my feet most my life with walkin with my feet inwards and doctors always tellin my parents i will grow out of it. From the age of about 17-18 i walk on the side of my feet with the right one hurtin more than the left been ...

Cnkh

Chris's blog....... more updates march 17th

Posted by Cnkh
28 Jan 2013

Hi my names chris I live in West Yorkshire and have been surfing this site and cmt-uk to gain knoledge and Information about my condition.

A little about me,
About 4 years ago (age 21) I noticed that my calf muscles were on the small side so long story short I ...

gunner

E.S.A. APPEAL

Posted by gunner
15 Nov 2012

Hi everyone finally after a lot of grief stress and paperwork got through my court appeal and finally had sensible people who made a correct decision and could see how i was struggling and after just 20mins and a 10min deliberation decided that my benefit should be re instated and recommended ...

HorshamMalc

CMT in the news .... so sad that it had to be this way.

Posted by HorshamMalc
22 Oct 2012

I read in a daily newspaper today that the poor young mother who was mown down by a van in Cardiff at the weekend, was a 32 year old CMT sufferer. That's being cited as the reason why she was able to push her two children out of the van's path, but was not able to move fast enough to ...

Ednamay

SAFOs

Posted by Ednamay
23 Sep 2012

I have used AFos in the past and have had problems with the velcro against my skin. I am now using my second pair of SAFOs which have been supplied by the NHS. I have had skin problems around both inside legs, with infections, swelling, pain, irritation etc. I have contacted Dorset Orthopaedic ...

gradia

SZUKAM POLAKOW Z CHOROBA CMT

Posted by gradia
11 Sep 2012

JESTEM MAMA CHOREGO DZIECKA I CHCIALABYM NAWIAZAC KONTAKT Z OSOBA O PODOBNYM PROBLEMIE , POZDRAWIAM EWA MOJ TEL: 07720749390

John1945

Be on your guard for symptoms of Angina !

Posted by John1945
6 Aug 2012

Hello To All Fellow CMT Sufferer's >>>>

As part of my ongoing exercise routine, my wife and I go walking 4/5 (3-5K) days a week to
assist me with my CMT 1a / Diabetes Type 2 / Hypertension / Sleep Apnoea / I have now reached the age of 67 years:
...

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